What we do
A global initiative – driven by PwPD
We are a patient-led, independent, non-profit organisation based in Berlin. Since 2024, we have been creating a global, digital Parkinson’s registry to structure and collate the extensive experiences of those affected and make them available as open data for research – for a better quality of life today and prevention tomorrow.
It is estimated that worldwide 12 million people live with Parkinson’s disease; 12 million families suffer from its increasing effects; symptomatic treatments provide temporary relief, but there is still no disease-modifying therapy available.
Our mission: Global research can better understand the fundamentals, localise the weak points of the disease and eradicate Parkinson’s if significantly more health information (including historical and biographical data prior to diagnosis) is collected worldwide.
“We started Kill Parkinson because we kept meeting people who were told to wait for research that might never reach them. So we’re bringing the Parkinson’s family’s collective knowledge together — to boost PD research.”
Marco Hamburger
Founder & Managing Director
“There are already 25 of us building something that could eventually serve 12 million people. Every person who joins multiplies what we can do.”
Melinda Barkhuizen
Content & Data
“Over 12 million people live with Parkinson’s today. The insights and lived knowledge of every person affected already exist — we just need to bring them together.”
Alena Snelling
Operations & Management