
Our Kill Parkinson team
We are a growing international team of around 20+ volunteers that is building the global Parkinson’s Register with heart and expertise. The concept and technical structure are in place – goal: launch in 2026. We work independently of economic interests and finance ourselves exclusively through donations.
We are pooling our expertise to establish the world’s first open data and patient-led Parkinson’s registry. Every day, we are working hard to make the knowledge of 10 million people with Parkinson’s available to all of us.
We will provide insights into all traditional and alternative therapies today, gather the latest findings on how to prevent Parkinson’s disease and finally defeat Parkinson’s tomorrow.
The people behind the mission
Many members of our team have experienced the impacts of Parkinson’s disease – whether because they themselves live with the disease, care for someone who suffers from it, treat it, or show solidarity. It is a fight for our future.
We all work solely on a voluntary basis and in our spare time alongside our family, work, studies, etc. Each one of us brings personal experience and a great deal of passion to the table. Without this collective effort, our development would not be possible. We would like to express our heartfelt thanks to all of you. ❤️
By the way, you can always find our open positions on LinkedIn if you would like to join our mission.
Below you will find an overview of the wonderful people who have contributed their ideas and many hours of their personal time since 2024. We do our best to keep this overview up to date, but we may not always succeed :- (
About me
I’m Adam Jerrett, a UK-based social impact game developer and educator who’s obsessed with turning the complexities of the human experience into play that feels achievable.
Parkinson’s & I
I don’t have a direct connection, but I’ve seen Parkinson’s up close through friends’ families, and with my wife working as a medical doctor, so empathy in healthcare sits pretty close to my heart
My role in Kill Parkinson
I’m the Senior Narrative and Gamification Designer, turning the registry into a cosy, story-led experience. I’m writing the world and voice, and designing the progression and gamification so contributing data feels engaging, meaningful, and worth coming back to.
About me
I work at the intersection of strategy, operations, and human impact, with a background in service design, sustainability, and non-profit leadership.
Parkinson’s & I
I believe in the power of big data and committed volunteers to help prevent neurodegenerative diseases.
My role in Kill Parkinson
As Chief of Staff at KiPa, I focus on building structures, operational rhythm, that help our volunteers do meaningful work and stay for the long run.
About me
I am a goof and a neurodiversity consultant and strategist passionate about building systems that respect human difference while turning complexity into meaningful, real-world impact.
Parkinson’s & I
My grandfather lived with Parkinson’s for over three decades, and witnessing the daily impact and struggles firsthand is what drives my commitment to be part of meaningful change in this space
My role in Kill Parkinson
At Kill Parkinson, I contribute to strategy, communication, and ecosystem building to help turn data, research, and collaboration into real-world progress.
About me
Ich bin ein in der Türkei zugelassener Rechtsanwalt mit Sitz in Berlin, der über einen LL.M.-Abschluss verfügt und Erfahrung in den Bereichen Handelsverträge, Datenschutz und internationales Recht mitbringt. Der Schwerpunkt meiner Arbeit liegt auf der Unterstützung von Unternehmen und Projekten bei der Gestaltung rechtlich fundierter und skalierbarer Rahmenbedingungen, insbesondere an der Schnittstelle von Recht, Technologie und digitaler Gesundheit.
Parkinson’s & I
My awareness of Parkinson’s disease has grown over time, leading me to take a deeper interest in patient-centered research and the role of data in improving treatment outcomes. This motivated me to contribute to initiatives that aim to support patients while advancing responsible, data-driven innovation in healthcare.
My role in Kill Parkinson
I support the team as a Legal Advisor, focusing on GDPR compliance, data governance, and the development of legal frameworks for research and AI-driven health initiatives. My role involves ensuring that data is handled in a compliant and ethical manner, while enabling the project to build a robust and trustworthy infrastructure for its patient registry and research activities.
About me
A former Military Engineering Officer from Greece who transitioned into Software Engineering, now focusing on building scalable infrastructure, automation, and reliable systems that bridge development and operations.
My role in Kill Parkinson
I contribute to the operational needs and design/maintenance of the main website of the organization, developing a custom theme and implementing features that support user engagement, and long-term scalability.
About me
I’m a software developer based in Berlin with a background in building scalable web applications and a passion for using technology to support meaningful causes.
Parkinson’s & I
While I don’t have a personal connection to Parkinson’s, I’m motivated to contribute my skills to support research and awareness that can improve lives.
My role in Kill Parkinson
As a software developer, I help build and maintain digital platforms that support the organization’s mission and outreach.
About me
For more than 15 years, I have been working in communications, marketing and PR functions for global enterprises, consultancies and non-profit in technology and healthcare. Collaborating with healthcare professionals, caregivers and key opinion leaders in the medical sphere, I have learned what it means when everything is centered around the patient and their benefit – whether it is a product design, service or communication.
Parkinson’s & I
Having supported someone very dear to me through their jouney with Parkinson’s, I understand how these patients are affected and the challenges and suffering this disease brings. I believe technology can drive medical advancements that make the impossible possible, creating a better future for patients and their families.
My role in Kill Parkinson
I am excited to support the initiative, bringing my international experience in digital marketing strategy, planning, and campaigns to reach out to as many people as we can, contribute to building a caring community, and make life better for those living with Parkinson’s.
About me
I’m a product designer and UX researcher, with experience at Deloitte and Vodafone. I’m passionate about creating thoughtful, user-friendly digital experiences that serve a real purpose.
Parkinson’s & I
Although Parkinson’s hasn’t directly affected anyone close to me, I strongly believe in the importance of supporting meaningful causes. This project gives me the opportunity to use my skills to make a real difference in the lives of those affected by Parkinson’s, and to stand in solidarity with the community.
My role in Kill Parkinson
At Kill Parkinson’s, I’ve been actively involved in both the website redesign and the design of a digital product that functions as a patient registry. This platform empowers Parkinson’s patients to contribute their health data—anonymously and safely—which in turn helps top researchers identify patterns and work toward a cure.
About me
I have a background in business administration, live in Berlin with my four-year-old son and my husband, originally come from Kenya, have been working in HR for many years and love life, music and travelling.
Parkinson’s & I
After a life-changing diagnosis of Parkinson’s in 2017 within my family, I became deeply engaged in the Parkinson’s community and believe in the power of collective knowledge and insights sharing for research progress.
My role in Kill Parkinson
I contribute my expertise in business administration, HR, and legal matters, as well as my personal experience as a family member of someone with Parkinson’s.
About me
About me: I am an experienced Frontend and Mobile Developer with 8+ years of expertise in building scalable web and mobile applications, passionate about using technology to create meaningful impact.
My role in Kill Parkinson
As a Senior Software Engineer, I help build and maintain the digital tools and platforms that power our mission to fight Parkinson’s disease.
About me
I am a biologist turned user experience designer from Germany, currently living in Italy and working in the field of healthcare technology.
Parkinson’s & I
When a good friend was recently diagnosed with Parkinson’s, I felt powerless. So when I discovered the chance to support Kill Parkinson with my professional skills, I didn’t hesitate to join.
My role in Kill Parkinson
I am involved in the design of the Parkinson’s patient registry which is a global digital platform for patients to provide their lifestyle and health data. These data will support research into the largely unknown causes of the disease.
About me
I am Senior WordPress Developer with 7+ years of experience delivering high-performance, fully custom websites for global brands across the USA, Canada, UK and Europe. I specialize in building complex WordPress ecosystems from scratch – including custom themes, modular Divi/Elementor/ACF architectures, E-Commerce websites, multisite infrastructures and API-driven product experiences
Parkinson’s & I
My connection to Parkinson’s is personal. Volunteering is my way of giving back and helping others facing the same journey.
My role in Kill Parkinson
As a volunteer, I work on the KillParkinson website to improve functionality and content. I focus on making the site reliable, easy to use and helpful for people.

Insa
Psychologist & Patient Advocate
About me
A psychotherapist in Berlin, I’ve spent decades helping others navigate complex health challenges.
Parkinson’s & I
My own diagnosis in 2019 reframed everything. I live in the “honeymoon phase” with deep empathy for others.
My role in Kill Parkinson
I contribute psychological insights and patient study participation to help build a more complete data model.
About me
Over the past several years, I’ve worked extensively with modern web technologies. I’m passionate about building intuitive digital experiences, and I’ve also volunteered to teach web development to refugees as part of community-driven initiatives.
Parkinson’s & I
While I don’t have a personal connection to Parkinson’s, I’m deeply committed to using my skills for meaningful causes.
My role in Kill Parkinson
My role includes building and maintaining the website, customizing themes and plugins, and making sure the site is both user-friendly and easy to update.
About me
I am a neurological physiotherapist from India with hands-on experience supporting individuals with Parkinson’s disease, stroke, and other brain and spine conditions. In my professional roles, I have delivered neurological rehabilitation, facilitated support groups for people with Parkinson’s disease and their caregivers, and conducted awareness programs and workshops focused on movement disabilities, with a strong emphasis on assistive technology. In April 2025, I relocated to Berlin to join my husband and am enjoying life in this vibrant city. My current focus is on mastering the German language, obtaining my license to practice as a physiotherapist in Germany, and exploring new opportunities in the healthcare field. Outside of my professional life, I enjoy dancing, exploring new cuisines, and discovering new destinations.
Parkinson’s & I
Growing up, I witnessed the challenges of Parkinson’s firsthand through my grandmother, an experience that shaped my interest in neurological healthcare. As I progressed in my physiotherapy journey, this evolved into a commitment to improving the lives of individuals living with neurological conditions. During my time with PDMDS India, I conducted a range of exercise-based interventions to support patients in their daily functioning and independence.
My role in Kill Parkinson
Through Kill Parkinsons, I hope to share my expertise with a wider community, create meaningful impact, and enhance the quality of life for both patients and their caregivers.
About me
I am a Senior Legal Advisor. I joined KillParkinson last year after being inspired by the organisation’s energy, purpose, and commitment to impact.
Parkinson’s & I
While I don’t have a direct personal connection to Parkinson’s disease, my drive to contribute to meaningful, people‑focused work led me here.
My role in Kill Parkinson
I support KillParkinson in staying compliant while helping build the Registry, enabling patients worldwide to identify shared patterns, coping strategies, and strengthen the global knowledge base to combat the disease.
About me
I am a neuroscience graduate with 5+ years of experience in neurodegenerative disease research, public speaking and science communication.
Parkinson’s & I
While I do not have a personal connection to PD, I have encountered another neurodegenerative disease in my family: my grandfather suffered from Alzheimer’s disease. This is why I chose to study neurodegenerative disorders and to volunteer for KiPa to raise awareness and fight these devastating conditions.
My role in Kill Parkinson
I develop influencer marketing strategies that involve engaging with key Parkinson’s disease influencers and HCPs across social media platforms to grow our community and raise awareness of our patient registry.
About me
I studied international management in Paris and Berlin, with a specialization in marketing. My strong interest in healthcare and innovation led me to Kill Parkinson.
Parkinson’s & I
Although I’m not personally affected by PD, witnessing my grandfather experience symptoms of a neurodegenerative disease in his later years gave me a personal insight into how deeply these conditions can affect both patients and their loved ones.
My role in Kill Parkinson
As a marketing specialist, I help grow our online presence, raise awareness about Parkinson’s disease, and share our mission and project with the world through digital strategy and creative content.
About me
Family man, father and cosmopolitan – based in Berlin since 2005, with expertise in digital start-ups, healthcare, digitalisation and omnichannel strategy.
Parkinson’s & I
Diagnosed at 42, in the midst of our family planning and after years of unexplained symptoms. As a #YOPD patient, I know how this disease hits and changes your life with full force.
My role in Kill Parkinson
I try to keep all the balls in the air at the same time and continue to develop the vision. With my network, my energy and my knowledge in the field of digital healthcare, I hope to contribute to driving our mission forward and one day cracking the code on this burdening plague that is Parkinson’s disease.
About me
I’m a visual artist and illustrator who enjoys creating meaningful visuals that connect emotion, storytelling, and purpose.
Parkinson’s & I
Through KillParkinson, I’ve learned how creativity can be a powerful tool to raise awareness and support the Parkinson’s community.
My role in Kill Parkinson
I collaborate as a senior character designer, contributing visual and creative work to help communicate the mission and amplify its impact.
About me
I have been working in healthcare for more than 15 years and currently work as a freelance presenter and healthcare expert. I am committed to telling stories and leading discussions that really move people.
My experience as a nursing manager in intensive care units has shown me how important precision and empathy are when dealing with patients and doctors. In addition, as a manager in start-ups, I have learned to drive change and motivate teams, with patient engagement and shared decision-making being particularly close to my heart.
My role in Kill Parkinson
I have known and valued Marco for years as a former colleague and friend. My involvement with the Kill Parkinson Initiative is a matter close to my heart. I have extensive experience in moderating events and panels for various pharmaceutical companies, particularly in the field of Parkinson’s disease. This work enables me to disseminate innovative solutions and insights and to promote dialogue between patients, experts and industry. Through my work in my network, I am committed to improving the quality of life of people with Parkinson’s disease and advancing research.
About me
I am a pharmacist by training, with a PhD in neuroscience where I investigated Parkinson`s disease genetics. Currently, I use the power of large scale omics and clinical data to find new disease markers and drug targets in a variety of diseases.
Parkinson’s & I
After seeing the painful experience of PD in a loved one, and through my PhD research I am committed to help find a cure
My role in Kill Parkinson
As an expert in Parkinson`s disease and the power of big data, I help define the most impactful questions we can ask and practical aspects of setting up the registry.

Dr. Michael Lorrain
Neurologist and psychiatrist
About me
I am a Parkinson`s specialist neurologist and psychiatrist, and founder of an online consulting company for patients and caregivers helping people to explain their illness, the results of their examinations and to help them to develop coping strategies. I was member of many advisory boards in pharmaceutical companies and developed several teaching courses for doctors, nurses and patients.
Parkinson’s & I
I founded the first specialized practice for Parkinson and movement disorders in 1991 in Duesseldorf. Until 2023 we diagnosed and treated up to 1200 Parkinson patients per quarter.
My role in Kill Parkinson
I am a senior and extremely experienced consultant in the field of Parkinson`s disease.

Michelle Lee Jia
UX/UI designer and 2D artist
About me
I’m a designer and artist based in Vancouver, BC, dedicated to creating accessible digital products for social good, with a passion for blending versatile visual styles with purposeful storytelling to build deep, empathetic connections with users.
Parkinson’s & I
While I may not have a direct personal tie to the condition, I am deeply driven by the opportunity to use human-centered design to transform a complex health journey into a supportive and manageable experience.
My role in Kill Parkinson
I focus on creating a world of characters and interfaces that evoke a sense of calm by designing gentle guides, ensuring that users feel supported, empowered, and at ease as they navigate their journey.
About me
Full-stack developer with over 20 years of experience working on helping people automate processes to improve their quality of life.
Parkinson’s & I
I like working on projects which can do some good for mankind and I believe the Parkinson`s registry is one of them.
My role in Kill Parkinson
I am a software developer working on making the software behind our database scalable and secure.

Niklas Oetken
IT-consultant
About me
With a dual background in political science and computer science, I now work as an IT-consultant.
Parkinson’s & I
My grandmother had it. I saw the toll it took. I want better answers for the next generation.
My role in Kill Parkinson
Together with Sergei, I am responsible for the technical conceptualization and implementation of the register and the management of relationships with hosting providers.
About me
I’m a German citizen with 20+ years as a digital and e-commerce strategist, operator, and leader – based in Panama and working with organizations across the U.S. and Europe to turn digital potential into real results.
Parkinson’s & I
My wife’s grandfather and grandmother both lived with Parkinson’s, which drives my commitment to finding better answers for families like ours.
My role in Kill Parkinson
I support our ditgital strategy and execution – making sure our message reaches the right people, builds trust, and drives action to keep this mission moving forward.
About me
I am movement disorders specialist and passionate about visual and user experience design.
Parkinson’s & I
Since 2008 I am treating and consulting patients with Parkinson’s and since 2020 support startups to develop digital therapies accompanying patients in their daily lives and hopefully will help to improve medical care services. Giving patients their own voice in shaping future treatments together with specialists and scientists opens up a key value to successful treatments.
My role in Kill Parkinson
I am thrilled and thankful to have the possibility to provide my design skills at Kill Parkinson’s, keeping my medical and scientific background still in mind.
About me
Born in Tuscany, I’m a data scientist with a background in statistics and international research.
My role in Kill Parkinson
I apply machine learning and analytics to help uncover new patterns from patient data and support registry development.
About me
I am a software developer, active in the field since 2000s.
My role in Kill Parkinson
I am responsible for implementing the software behind various components of the PD registry.
About me
I’m Stefan, a kid of the early 1970s, born and grown in Nuremberg, now living in Munich, Germany. I am a experienced quality and operations manager with a passion for improving processes. I worked in medium size IT companies, responsible for quality assurance, quality management and management systems.
My role in Kill Parkinson
As a Strategic Operations Coordinator I’m supporting Marco at coordination/communication, project management, strategic development and organizational tasks.
About me
Originally from Peru, I earned my PhD in Germany researching new therapies for Parkinson’s.
Parkinson’s & I
I turn complex research into simple, clear updates for the Parkinson’s community.
My role in Kill Parkinson
My passion for neuroscience stems from seeing the pain Parkinson’s and other neurodegenerative diseases have had on loved ones.
About me
I’m an Australian Software Developer based in Spain, with over 20 years of experience and a strong focus on web accessibility and native web technologies. I#ver contributed to a wide range of projects, from custom e-commerce platforms to open-source developer tools, and I actively mentor and tutor aspiring developers in programming fundamentals.
My role in Kill Parkinson
I’m the technical lead of the Kill Parkinson website, built on WordPress. My work focusses on improving accessibility, SEO, and overall performance, while developing new features that support the site’s mission and enhance user experience.
Our Partners
These organizations stand with us, supporting us pro bono, lending their expertise in healthcare data, communication, and strategy to help accelerate progress toward a cure.
About me
For more than 20 years, I have been dealing with all topics related to breathing, voice, speech and swallowing. Over the years, I have specialised in the treatment of patients with neurological disorders, especially Parkinson’s disease, and have acquired a wealth of practical and theoretical knowledge in this field.
I often accompany my patients over several years. Through this intensive work with them, I have become very familiar with these diseases. I have learned what it means for the lives of those affected and their families to live with Parkinson’s disease.
My role in Kill Parkinson
Parkinson’s has been with me throughout my entire professional life. In recent years, I have also developed special digital therapy solutions for Parkinson’s here. The Kill Parkinson Initiative comes at the right time for me, and I also believe that with today’s technical possibilities in research, we can open many new doors. That is why I am happy to contribute my knowledge and my network here.
About us
For many years, direkt + online has been one of the leading providers of marketing solutions for the healthcare sector. Our services range from data and integration to communication services. Our aim is to be a reliable partner in finding the right solution – goal-oriented and cost-efficient.
Our role in Kill Parkinson
We are convinced that it is right for patients to take the initiative in many areas and support research with their collective knowledge. As specialists in data in the healthcare market, we know what is now possible with AI and software. We are therefore happy to support the team with insights that enable them to engage with neurologists in Germany and inform them about the initiative.
About us
We are SLYHEALTH – your marketing agency for the life sciences industry. With many years of experience and a passion for excellent communication, we support clients in the DACH region with challenging projects. Our focus: creative and strategic solutions for product launches, refreshing established products and sales activation.
Our role in Kill Parkinson
The Kill Parkinson Initiative is very important to us at SLYHEALTH. With our experience in communications for rare and neurological diseases, we are helping Marco and his team to develop a targeted message. The aim is to reach patients, relatives and neurologists in order to raise awareness and promote dialogue. In this way, we want to provide impetus and strengthen the initiative in the long term.
About us
BIGVU is a leading web and mobile platform for professional video creation. With integrated AI tools, BIGVU covers the entire process – from scripting to recording and editing to publishing. Whether it’s a teleprompter, automatic subtitles or an AI video generator, BIGVU makes authentic video communication easy, efficient and accessible.
Our role in Kill Parkinson
BIGVU supports the Kill Parkinson initiative with its technology and expertise in video communication. This enables the creation of awareness videos that make people with Parkinson’s visible and tell their stories in an authentic and dignified way. Especially in cases of limited voice or facial expression, BIGVU enables messages to be conveyed clearly and effectively – a valuable contribution to raising awareness and promoting research and dialogue worldwide.
About us
As Salesforce consultants, we know that good technology takes the pressure off people and creates space for impact. That’s why we translate goals and working methods into a CRM system that provides orientation: clear structures instead of paperwork, reliable data instead of gut feelings, and targeted processes instead of additional complexity. We don’t think of CRM as a tool, but as a strategic foundation, so that technology doesn’t determine how work is done, but enables what needs to be achieved.
Our role in Kill Parkinson
Kill Parkinson thrives on networking, commitment and a shared dedication to progress. We support the association on a voluntary basis by setting up and developing Salesforce as a CRM system in such a way that structures, communication and processes interact reliably – as a stable foundation for future-oriented collaboration and sustainable development.
Join the team
Want to be part of a global movement to revolutionize Parkinson’s research? We’re constantly looking for driven, mission-minded people to share their ideas, time, and energy.

































